COMISSÃO DE DEFESA DOS DIREITOS DAS PESSOAS COM DEFICIÊNCIA

those. Primeiramente, I want to thank the deputado Rodrigo Hollenberg for the opportunity, for the commitment so necessary, not only for our families, our lives, but for the same development of society. I am here as director of the Association Mães Coens do Brasil. I am a white woman, with bright hair, with bright hair on the shoulders, wearing a blue blue blue, with high-duty blouse. I'm a student at level 1 of support level, and I also speak with a woman autistic with high skills. Mães Cunhas is an association of patients and mothers of various conditions that fight for access to health, therapy, and dignity for our families through the maconha plant, Cannabis, which finally had the regulation by Anvisa in a few weeks. I I prepared a speech, but I wanted to change it and bring the other speech that came before, because I heard several talks about this, and even this struggle in relation to access to macon as terapes, is a struggle very hard. Here at home, it has 10 years that I've been cultivating cannabis for therapy for my daughter. In the beginning, she was a 2-2-2-3-2-2, she had 3 years, not verbal, with many collapses, a measure of 3 convulsions per day. to have control of the health, but also to have a potential development of the person of autism. And I think what I'm most worried about in this talk is that in 10 years there was a regulation and recognition of the Anvisa. When we started the treatment here, it was not even the Anvisa authorized the import, right? And today it is a recognized treatment, with various research, with many advances, and my comparison here comes because my daughter nasceu in 2012, and her diagnosis came in 2015, data that coincide both with the Brazilian law of inclusion and with the Berenice-Pierre. and, in the meantime, we can get a regulation of the gun, tirar the criminal, trazer this as a access, not only for us, but for many families, and, in the meantime, other basic rights and necessary, we still fight, and fight a lot, not only for access to school, for inclusion, but for everything that involves the Brazilian law of inclusion and that involves quality of life and quality of development. So I would like to leave here this critique about the amorousness of justice system, that is what is access to our treatments, access to our rights, access to our work, but also the need and urgency of agility for these jobs to occur. I am at the disposal, not just not just me, but all the mothers of the association, for these work here with you, also can walk, and what you need, we can be able to give, not only support, but also to bring this pressure from urgency. Our children are growing, the life is passing, and we not only need to be listened and respected, but this all needs to be built. A new society needs to be built, and this urgency is immediate. Thank you all. We are here to thank